Saturday, December 21, 2013
NAMI Blog Repost
Saturday, December 14, 2013
At NAMI NJ Annual Conference
Sunday, December 8, 2013
NAMI.ORG Interview Repost
Helping Your Child Stay Organized and Handle Adversity By Brendan McLean, NAMI Communications Manager The Sensory Child Gets Organized: Proven Systems for Rigid, Anxious, or Distracted Kids By Carolyn Dalgliesh Purchase For Carolyn Dalgliesh, it was learning how to take the ideas and strategies that she gained from doctors and applying them in day-to-day activities at home. Doing so helped ensure that everyday challenges with her son, such as doing homework, eating dinner or going to bed, were met with as much preparedness as possible. Many parents with children affected by illnesses such as ADHD, OCD and anxiety, often face many challenges in learning how help their child, much like Dalgliesh experienced with her son. Carolyn Dalgliesh took the strategies that she found beneficial in her experience with her son, and turned them into a book to assist others. In The Sensory Child Gets Organized: Proven Systems for Rigid, Anxious, or Distracted Kids, Dalgliesh provides a straightforward guide for parents to help their children. While not a mental health professional, she draws on her own personal knowledge as a mother and as a professional organizer to provide suggestions to parents of sensory children, a term she uses to describe children with ADHD, anxiety disorders, sensory processing disorder, autism spectrum disorders and bipolar disorder. I spoke with her recently about her organization strategies, methods of parenting and what it’s like to be parent of a sensory child. You use the term “sensory children” to group children with illnesses like sensory processing disorder, ADHD, anxiety, bipolar disorder, OCD and autism spectrum disorders. How did you decide on this term to encompass all of these conditions? I think I really did it based on my own experience but also from what I learned as I was starting to work with families. One of the first signs of either developmental delays or behavioral issues beginning to manifest for a lot of kids is by the way they process information through their senses and how it was really impacting how they were experiencing their days and the world around them. So I really wanted to start where I thought many parents would be starting, which was that first experience of noticing something was a little different with their child. And, and that often came through how they were processing the world around them. As a parent of a sensory child, how did your own experiences help guide you in writing the book? The first time I came across the topic was with my own son. When he was around two we started noticing developmental delays and started the process of getting evaluated. One of the first names that got mentioned to us was sensory processing disorder. For each kid it’s different, but we could just see that in a big, busy place it was really overwhelming for him. He didn’t know what to look at first or how to break down information that was coming at him visually or aurally. I took my experiences and knowledge and thought they might be able to help other parents navigate the difficulties that I had. Are there any particular sources that you’ve drawn upon to help form your own ideas about how to parent a sensory child? For me it was a couple of things. It was definitely my own experience and my own total lack of understanding. My own child was a high functioning child so we were not really eligible for a lot of services. I just remember having speech and occupational therapy once a week and I would just pepper the therapists with questions. It wasn’t really about the therapy, it was about everything else in our day: how could I get him to a birthday party, how could I cut his fingernails, how could I get him to sit at the dinner table. There were many things that I found counterintuitive to what I thought parenting would be. 5As I was learning to understand what life would be like as a parent to my son, I realized that although I was incredibly organized, I wasn’t organized in a way that made sense to him. I was rigid and distracted in my own way and what I really had to do was understand what I could do to support him. That was really tough for my brain. I had to redefine not only what organizing looked like, but parenting as well. For parents discovering that they have a sensory child, what are some of the steps they can take to help their child? I think the most important step is to really redefine parenting. There was a lot that was just very different in the way I thought about parenting and the way it turned out to be. Personally, I had to consciously make that shift. The other part for me I would say is learning to objectively observe your child. We’re so close to our kids, but if we’re too close and too judgmental we really lose the ability to advocate for them. It’s such a hard shift but to me that is one of the most helpful things. You’re really able to learn valuable information about how to support them. The other thing is to constantly prioritize what their needs are. Every day you may have to sit down and think about your biggest challengesand then you maybe pick one to work on. You need to have a plan. There are many other challenges that parents may face as they continue to try and provide for their child. What would you tell a family that is struggling to make progress or has hit a roadblock? There are two things that I think are really powerful. One, you can learn as much from when everything goes wrong as you can from when it goes kind of right. So those times that you have with your child when it’s a train wreck are actually the times when you can get your ‘aha’ moments, which really change your experience the next time. The other thing is that for many sensory kids, their profile is consistently inconsistent and that’s one of the hardest things for a parent to understand. Some parents will get into a softer cycle of behavior and think that everything is fixed, that their kid is all better, and then they get kind of slapped in the face when the cycle changes. Understanding that there is this cyclical nature to the symptoms and challenges that many sensory kids have is a very helpful thing for parents to understand. You talk about two different teams that help provide support for the child. One is essential clinical support and the other is the team at home. How does the support they offer differ and how do they interact with one another to ensure the child gets the care and attention they need? The clinical support is so helpful for parents by providing them real, tangible knowledge around specific challenges. Having that check-in can be really helpful for the parent, but also the child. It’s another way to show our children that we are there to support them. I think what we can do at home is taking what is being done with clinical support, and use those strategies and tools during challenging times at home. It really becomes a great mirror of how to take some of those clinical methods of support and put them to use all the time. As a sensory child becomes an adult, there are undoubtedly some new challenges that arise. How can you prepare your child to make these adjustments? In the earlier years, as you’re working with those core tools of structure, routine and visual aids, you’re really helping sensory kids build executive functioning skills. As they get into middle school, when there’s that natural need for independence, it really becomes this great opportunity to pull back a little bit as a parent and see how they start to manage some of it. The main goal is that you want them to recognize when they hit a difficult situation or experience and you want them to be able to get to that place and say, “What’s my plan” and try to handle it. In your personal work, you help both children and adults. Are the techniques employed similar? Absolutely. I think the core thing around sensory organizing is really breaking it down, reducing any of that external stimuli and then creating that visual aid so you can know what to expect in a situation. That strategy can work for kids and adults alike. So while you’re really supporting a new experience, you’re also hoping to build a habit. The other things that can be used are the power of choice, the gift of fascination and the art of distraction. Those three tools can be used effectively to address a challenging task or a challenging time of day. Do you see the challenges of parenting sensory children changing along with technology and culture? I do. You know, technology really provides some great opportunities for supporting many sensory kids but I still think at the core of it, there has to be a more tactile approach to get kids to really learn the process of making a plan. So I think you have to have a time before you really rely on technology. That’s why it can be so helpful to use some of the hands-on techniques when they are younger so that when they move on to using technology they already have a core understanding of how it works. Have your experiences with other families taught you anything about how to handle the relationship with your own son? Absolutely. I think for me it does a couple of things. It reconfirms what I think are always some of the core challenges for so many sensory kids. Even though there are so many different diagnoses, the challenges are often similar. I think what I tend to be cautious about is thinking that I don’t have to do this anymore. So when I see the power of a small change with a family, it really reconnects me to how powerful this all can be.
Tuesday, November 19, 2013
NAMI Blog Repost
Saturday, November 9, 2013
Another reason that here is the place
Wednesday, November 6, 2013
Mega medication dosages in Disney
Sunday, October 20, 2013
Yes, it wasn't that I wanted it this way
Wednesday, September 11, 2013
Man on a mission in Clifton, NJ (Story from NJ.com)
Monday, September 2, 2013
Blog for the removal of certain medications (NAMI.org repost)
Saturday, July 27, 2013
Games you must pay with yourself
I'm very fortunate to have good control over my thoughts and emotions in times of trouble. Sometimes, but not always its a matter of attitude. Other times, it's distraction of your own thought processes-still others its very direction sensitive. For example, if your thoughts are in a direction that you don't want them to be in and you're doing one thing, turning the corner and changing your activities to something else often times does the trick of changing your brain chemistry for the better. It's not a question of will power, but more of a game you have to play with yourself to relieve whatever rut you're stuck in.
Thursday, July 25, 2013
OK2TALK about Mental Illness: Nami.org Blog repost
Sunday, June 23, 2013
June is PTSD Awareness Month. NAMI.org repost
Thursday, May 30, 2013
Children's Self Portrait
My son--who's father has schizophrenia, has been making self-deprecating remarks about himself as a pattern that I've seen over the past year. He is a six year old in first grade doing really well in school and by all accounts is a healthy, smart, talented and promising young lad. The only problem is that I think he has unfortunately started to walk in his father's footsteps and has, by his mother and my observations, begun to show signs of developing mental illness later in life.
Part of me wants to think he is joking--trying to get a rise out of us, partly due to his childish expression on his face when he is asserting these unusual-for-a-six-year-old-remarks of negativity about himself. Another part of me wants to seek help for him in the form of bringing him along to my psychiatrist's appointment.
Will it all work out for the best in the end? Or would it be best if I acted upon my instincts and sought professional help for my son?
-A Concerned Father
Saturday, May 25, 2013
Nami.org Blog Repost--Kimberly's Story
Wednesday, May 15, 2013
Interesting NAMI Blog Repost--Connee's Story
Adjustment
Thursday, April 18, 2013
The unfortunate dreams of a highly imaginative, slighly mentally jaded individual
Friday, March 22, 2013
MSSB Cares
And maybe they do--but they have a funny way of showing it if so. For a guy like me--when I need help or support there is still a great deal of stigma and discrimination for those with mental illness.
Thursday, March 21, 2013
Oh, by the way.....
Saturday, March 16, 2013
Sandy Hook NAMI Blog Repost
NAMI Blog Repost
Tuesday, March 12, 2013
Working through all the psychic noise
Sunday, March 10, 2013
And that's why they call it the blues
Because of recent events happening in my life, I've decided to change my attitude and just be happy most of the time. Let's face it folks, regardless of circumstances, if we choose to be happy and change around our attitude, there is little anyone can say except that it's the right way to live.
Sunday, February 24, 2013
Aye, there's the rub!
Sunday, February 17, 2013
iOS Developer
Wednesday, February 6, 2013
Lego is creating lifelong fans!
By Mike Krumboltz
Seven-year-old Luka Apps spent his Christmas money on the LEGO Ninjago Ultra Sonic Raider set. A sound investment, if you ask us. But the thing about LEGOs -- those small pieces are easy to lose. They don't call 'em minifigures for nothing.
Against his father's recommendation, young Luka took his newly procured Jay ZX shopping. And then, wouldn't you know it, the figure went missing, never to be seen again.
Luka, not one to admit defeat, decided to write a letter to the good people at LEGO seeking a replacement.
ITV News has Luka's letter:
Hello.
My name is Luka Apps and I am seven years old.
With all my money I got for Christmas I bought the Ninjago kit of the Ultrasonic Raider. The number is 9449. It is really good.
My Daddy just took me to Sainsburys and told me to leave the people at home but I took them and I lost Jay ZX at the shop as it fell out of my coat.
I am really upset I have lost him. Daddy said to send you a email to see if you will send me another one.
I promise I won't take him to the shop again if you can.
– Luka
A short time later, Luka received a reply from Richard, a LEGO customer service representative. Richard wrote that he had spoken to Sensei Wu, a master from the Ninjago line.
Luka, I told Sensei Wu that losing your Jay minifigure was purely an accident and that you would never ever ever let it happen ever again.
He told me to tell you, "Luka, your father seems like a very wise man. You must always protect your Ninjago minifigures like the dragons protect the Weapons of Spinjitzu!"
Sensei Wu also told me it was okay if I sent you a new Jay and told me it would be okay if I included something extra for you because anyone that saves their Christmas money to buy the Ultrasonic Raider must be a really big Ninjago fan.
So, I hope you enjoy your Jay minifigure with all his weapons. You will actually have the only Jay minifigure that combines 3 different Jays into one! I am also going to send you a bad guy for him to fight!
Just remember, what Sensei Wu said: keep your minifigures protected like the Weapons of Spinjitzu! And of course, always listen to your dad.
And that, ladies and gentlemen, is how companies score lifelong customers.
For game news, free codes and more, Lik